Thursday, January 31, 2008
Please join me in saying a very special prayer for a very special lady tonight, Wendy
Wends is a breast cancer survivor, and will be going in for a hysterectomy tomorow due to the finding of some cancerous cells, which seem to be in the very early stages.
Please pray that all goes great tommorow and that she is not in pain or discomfort as she recovers. Please pray that the cancer be banished from her body never to return.
The Lord is great Wends, and HE shall continue to take very good care of you, always
You are always in our thoughts and prayers
God Bless and call on us if you need anything
All our love
Mark,Samm, Deqlan and Logs
Wednesday, January 30, 2008
Its been ages since i did a proper update - you wouldnt believe all that has gone on the last few days which has kept us very very busy and thus my first chance to update on a lot of things is now!
Where do I start? Lets see...the wedding...
We attended the wedding of Kobus and Bronwin on Saturday and it was really wonderful .
Bron looked beautiful and she looked so happy, was wonderful to meet Kobus who is besotted with Bron. They have the most beautiful son, Matthew , who reminds Mark and I so much of Deqlan - it was so strange - as he walked down the aisle ( he was the cutest ring bearer ever) both Mark and I looked at each other and said how he reminded us of Deqlan - his face, his hair, how he walked , everything! It was also so wonderful to catch up with Nix and Darryl, Loren and Leigh, Louise and Roelof ( we have a gorgeous little daughter, Jessica 2, and have just found out they are now having twins, congrats guys! ) and of course Bron & Kobus and her family. They are off to Mauritius on Honeymoon and had to kiss Matt goodbye as he went with his grandparents to Parys for the week - poor Bron was very heartsore and I to had tears in my eyes - so sad to say goodbye to the loves of our life- for 1 minute or 1 week ! Whilst we were at the wedding I got a phone call from Meggie......
' Hi Sammy, i am at the hospital , they have admitted me' WHAT! I COULDN'T BELIEVE MY EARS! Meggie was admitted to Unitas saturday evening with sky high blood pressure and 3 clots visible on an ultra sound! We dont know if it was from the first problem or a new one . Megs was given medicine and watched with a careful eye over the weekend. The condition was classified as Secondary Post Partum Hemorrhage - this basically means a hemorrhage more then 48 hours after Keaton arrived . The doctor then decided to intervene surgically to solve the problem permanently. Megs blood pressure was again a problem during surgery and the doc wanted Meggie to spend another night in the hospital. Thank Our Lord, Megs started feeling better and all was on track, and she was discharged yesterday. Please pray for Meggies total healing from this problem and for her to continue enjoying being a Mommy at home!
It wasnt even 2 hours before we received another phone call from Meggie that one of the people at Conrads work was in an accident in Conrads new bakkie! The trailer with a clients ordered and manufactured kitchen units flipped, causing the car to overturn! The drivers are regarded lucky to be alive as the car is a write off.
Otherwise...all is going well!
Deqlan has grown by the day - he is really looking so well! Has put on weight, his hair is so beautiful and blond, he is FULL AND I MEAN FULL of energy - he keeps us all on our toes - we have to have eyes everywhere as he gets up to lots of tricks. He continues to make us laugh and we just love him more each second. He LOVES trying to get into the cupboards he is not allowed into and he just seems to love kitchen utensils more then his own toys! They fascinate him! He has even started taking the broom out the cupboard to sweep the floor! He is going to make his wife very happy some day! Deqlan has mastered the art of getting onto and off our very high bed and on and off our couches. He Loves bathing and gets very excited when i run the water , he already starts lifting his leg to try and jump in. Deqlan has a real fascination for Morning Live, our breakfast programme in South Africa and he particular enjoys the stock exchange and commodities - Dada and Deqlan watch every morning as Morafe presents the FTSE and Dow Jones. When Deqlan hears the music he stops what ever he is doing and runs to the tv to check on the indicators for the day. We have a real genius on our hands already - he probably understands a lot more then I do!
I chatted to our oncologist yesterday who has suggested we go for the blood and urine tests and an ultra sound round the 12th of Feb - this will be our first follow up since the op and bone marrow aspiration. Please continue to pray very hard for our soldier - that he never ever ever ever relapses and that he continues to grow stronger each day!
I have so many many friends that are have just found out they pregnant, have been for a few months, baby due round the corner, i just want to say congrats to you all and hope the rest of your pregnancies go extremely well! Wow - i cant wait to meet all the new little CLAIRES, ELRIZA'S, TANIAS,SAMS,CELESTES ,LORENS OF THE WORLD - Deqlan and Keaton are going to be blessed with so many wonderful friends!
A huge congrats to Philip and Tracey on the arrival of Rakel on 26 jan! She arrived exactly 5 years after her brother Lionel did ! Congrats guys, enjoy this special time and what another wonderful gift The Lord has Blessed you with! Hope to meet the little princess soon.
Well let me run for now, promise to post some new pics and promise to try and post more regularly . Please , please keep all of our friends from around the world in your prayers, we have to keep them going, always, I know Our Lord continues to listen and continues to heal and give us his miracles.
EVERYTHING IS POSSIBLE TO THOSE WHO BELIEVE
God Bless and all our love
Mark, Samm & Deqlan
Saturday, January 26, 2008
God Bless and all our love, enjoy school!
Friday, January 25, 2008
Thursday, January 24, 2008
Wednesday, January 23, 2008
Tuesday, January 22, 2008
What an absolute honor it was to meet my god son and nephew and hold him for the very first time! Nanna, Grandpa , Deqlan and I where fortunate enough to be able to go and meet the little guy and we all fell even more in love with him!
What a beautiful little soul he is - what a gift, Thank You Dear Lord for helping Keaton to get stronger each day and that he is now home safe and sound with his loving parents
It was the best feeling to hold such a tiny little baby again, cant believe Deqlan was so small only 16 months ago!
Keaton is tiny, but what a big spirit he has! He is to gorgeous , perfect little face, lots and lots of dark hair, eyes like his Daddys mouth like his Mommy! You just want to eat him up!
Deqlan was not to interested in the little guy, we dont think he quite realised that it was a tiny little human being and not a doll! As Conrad says, when Keaton starts crying and when he is awake Deqlan will soon be wanting to stroke and pat and poke and pull ha ha ha - he did try to rub his head , but we had to slow him down a little! Cant wait for them to play together, i just know they are going to be best of mates!
Congrats guys - you are the most fantastic, devoted, loving, caring parents I have ever seen and i know that nothing will ever harm a hair on your beautiful boys head - Conrad, I am so grateful to you for taking the most amazing care of Megs and Keaton - there is nothing that you wouldnt do for them - we knew that already by the way you looked after Megs and us, but even down to going clothes shopping and grocery shopping for Megs and Keaton - thank you from me, for taking such good care of my sister and nephew - you are truly one in a zillion. Megs, wow. i take my hat off to you to - I KNOW - how difficult it is to watch your son ICU and to have to stay over at the hospital , not being in your own space with your own things and all you want to do is bring little one home and have him in HIS clothes, in HIS bed, you did fantastically well and you never even moaned once about any pain or your discomfort - you truly now know what it is to feel a love so deep and true that you put yourself way back in the que - please also take care of yourself and let us take care of you to, rest and get your energy up and take it easy ! If there is anything we can do guys please just pick up the phone - we love you all so much and cant wait to see you soon again!
I must mention a story about Nanna - every Saturday evening we put our prayers that we have written on a piece of paper, into the prayer bowl which is placed on the altar. Nanna discovered that she put another piece of paper in instead of her prayers! We later figured out that it was Keatons feeding times that Nanna had written down, so as to know when Megs was busy in ICU and we wouldnt be able to visit or reach her. Isnt God amazing? Thats the exact thing that was needed to get Keaton home! To get his feeding into a routine and up to the volume he needed! God works in wonderful ways!
Have a lovely evening and hope to post some new photos of our family including the new addition very soon
God Bless and love
He is growing by the day and looking so healthy and well! Deqlans hair also continues to grow and get more beautiful each day - im even brushing it now!
Deqlan is getting cuter each day and more clever! Deqlan LOVES helping load and unpack the dishwasher but his favorite part is opening and closing to the door - which he does ALL BY HIMSELF NOW! The other firm favorite is helping me load and unload the washing machine - but i got to watch Deqlan as he loves pushing the buttons, that say RINSE PLUS, RINSE HOLD - so when i got to the machine to take the washing out, a stream of water came running out! so guess who had pressed the button for rinse hold!
We have the best time ever playing hide and seek - i say 'OK BYE' and Deqlan bursts out laughing and starts running away - it take him 10 - 20 seconds to give me enough time to hide , and then he turns around laughing even more , and starts to look for me - he knows my hiding places though so finds me quite easily , so ill have to come up with some new ones ! ha ha ha
He also LOVES when Dada whistles - this is a guaranteed laugh for our soldier..even Mark just pulling his lips in preparation to whistle sends Deqlan into bounds of laughter, the type that comes from your tummy, a real hearty laugh
I Forgot to mention that on Sunday , grandparents where allowed in for 10 minutes in Neo Natal ICU to see Keaton - so Sophie and Nanna got to see Keaton and where both smiles from ear to ear! I got to see the beautiful boy through the glass door - wasnt allowed to go in, but at least got to see Keaton close up for the first time - HE IS TO BEAUTIFUL, and call me crazy but i can definitely see Deqlan in him - i think its the mouth- i told Conrad, Keatons VERY PROUD Dad, but he says KEATON LOOKS LIKE KEATON! HA HA HA HA
We are patiently awaiting the great news that Keaton is coming home! The doctors and nurses are all very very impressed and thrilled with his progress so we trust it will be soon! Promise to keep you up to date!
I spoke to Doctor De Jager yesterday and he to had recieved the great news that Deqlans bone marrow was clear ! He has asked us to arrange for urine tests and then two weeks from the day we do the urine tests, we will arrange a check up wtih him to discuss the results and the game plan moving forward.
Please continue to pray hard for our little soldier ,that he has recieved his total and permanent healing
God Bless and let us know how you all are
All our love
Mark, Samm, Deqlan
WE CAN DO ALL THINGS THROUGH CHRIST WHO STRENGTHENS US!
Isaac is 2 and a half and has stage 4 high risk neuroblastoma and is not doing well at all . Isaac and his family need a miracle and request all the prayers we can possibly get together.
Please pray for this beautiful little soldier and for comfort and guidance and strength for his family
Thank you and please continue to pray for all our friends fighting this war on neuroblastoma and other cancers. Prayer is the best gift we can recieve and give our children.
God Bless and lots of love
Mark, Samm & Deqlan
ALL THINGS ARE POSSIBLE TO THOSE WHO BELIEVE
Monday, January 21, 2008
Hope you are all well. I decided to do a quick general update for you all on our beautiful Keaton and to say Thank you for all the calls, sms's, facebook and email messages and that Im sorry I have not replied to most of them.
Basically, my placenta ruptured and I woke up on Wednesday morning at 02hoo bleeding, we got to unitas and after doing a lot of tests they thought I was in early labour but that all changed when my doctor did a scan at 06h00 and saw the rupture!
From there we went to theatre and I have an emergency c-section as my doctor felt that leaving Keaton in would be a great danger to his life and he thinks that Keaton would not have had a heart beat by Wednesday evening if he did not come out.
He was born at 10h01 weighing 2.510kgs and is 50cm long! As soon as they took him out I heard him cry which made me feel that all was okay and his Apgar score was 9/10 both times. He started a granting sound in recovery and they put him into an incubator for 1/2 as they thought he was cold, but the paed took him out and transferred him to Neo Natal ICU. The medical term for going to ICU was Resiportory Distress - they blew one steroid into him lungs through a machine which worked to open up his lungs - there is nothing wrong with his lungs they just needed to be opened - after that he was on oxygen and then he only had drips and a feeding tube. Yesterday all the drips were taken out. Today his feeding tube was taken out. He is not on any type of medication, oxygen or medical assistance in ICU, the only reason he is still there is to make sure he learns to feed enough at each feed, as some prem babies dont have the energy to drink for a long period of time.
He is gorgious and the light of my life - Conrad and I actually fight as to who will do the diaper change ect and we are so in love with our little guy..... I look at him and still cant believe that he is mine - a miracle sent from our God and that our God is watching over him very closely! I cant wait to take him home and be a mommy - wow NO ONE can prepare you for such love - such intense love............
Will let you know when we are home - hopefully soon! Enjoy the photo!
Friday, January 18, 2008
Just a very quick update to let you know Megs is doing great - she is walking around like she did before the caesar! I remember i was in terrible pain for the first 3 days and couldnt walk straight, couldnt even get in the shower! But not Meggie - she has been up and about as often as she can to get to our gorgeous Keaton!
Keaton is doing very very well and feeding is improving with each meal time! Saw some photos of him after he had pulled his naso gastric tube out, so you can really see his beautiful face now, how beautiful and how precious he is - i cant wait to meet you properly little guy! But you rest up and get strong now, Aunty Samm shall patiently wait for you to get stronger! Oh , the joy when you meet Deqlan for the first time, he wil instantly fall in love with you and want to bring you home with us!!!!!
Please continue to pray for Keaton to continue doing so well and for Megs and Conrad to continue doing the wonderful job they are doing of attending to Keatons every need!
Have a lovely weekend, God Bless,
Lots of love
Mark, Samm & Deqlan
FOR I KNOW THE PLANS I HAVE FOR YOU DECLARES THE LORD, PLANS TO PROSPER YOU AND NOT TO HARM YOU, PLANS TO GIVE YOU HOPE AND A FUTURE!
Thursday, January 17, 2008
We are not quite sure when then little guy will be allowed to come home, the wait is now for him to start feeding well! Please pray for our beautiful Keaton to continue doing so well and getting stronger each moment!
Mom and Dad are doing great and managed to get a bit of sleep on Wednesday night !
Meggie is already been walking around today and not complaining of pain at all ! I am so proud of you Meggie, I remember it was extremely painful and difficult for me, but you are looking so fantastic Megs!
Promise to update with more tommorow!
Have a great evening and please continue the prayers for the beautiful Du Plessis family!
SACRED HEART OF JESUS WE PLACE OUR TRUST IN THEE, ALL FOR THEE OH LORD, OH MY JESUS ALL FOR THEE!
GOD BLESS, LOVE AUNTY SAMM!
Wednesday, January 16, 2008
Tuesday, January 15, 2008
Monday, January 14, 2008
Hope you had a great weekend! Not sure if i mentioned it but Deqlan has been teething, the last 4 back teeth, and has had terrible nappies to go along with it!
This started on Thursday after the biopsy, but over the weekend seemed to get a little worse and didnt look very pleasant at all
So today, we went to visit our new paediatrician- this is the one the oncologist at Unitas recommended. She is wonderful, Deqlan very at ease with her and her office looks like an enchanted forest - we felt very comfortable with her. They even arranged a seperate room for us to wait in so we didnt have to sit with the other kids and chances of them having something Deqlan could catch
Dr Engelbrecht says she thinks its a virus in Deqlans colon - we sent a sample away and hope to get the results by Wednesday - this will determine if Deqlan needs an antibiotic or not - we just need to keep an eye on him and make sure he has lots of wet nappies and stays hydrated and no fevers.
While i was trying to listen to Doctor about a lot of other questions i had - Nanna and Meggy were trying to entertain our Deqlan - he was in fits of laughter and I couldnt manage to keep a straight face whilst trying to concentrate and had to apologise went i burst out laughing - Deqlan is so dam cute - he is cuter and gets more clever every day - he has figured, well Dad has tought him how to get on and off the couch all by himself. He also loves closing doors and cupboards after we have opened them.
We are still waiting on final results of bone marrow biopsy and should hear by Thursday - i am going to call on Wednesday thoughto check if they are out ! I will then contact Dr Dejager, our oncologist to schedule follow up and first follow up scan . Please continue to pray for Deqlan, for his total and permanent healing and for fantastic results confirming Deqlan to be NED
Well today marks 3 weeks till Meggy has Keaton - I CANT BELIEVE ITS ONLY 3 WEEKS TO GO - we walked past the maternity ward and the theatre where Megs will have her caesar and we all got very excited - she had a little bit of a scare with high blood pressure at her last check up but Nanna has kept a close eye on it, checking it every day and it has seemed to come down back to normal. Megs is tired and wanting they day to arrive - she said she is ready, bring it on!
We are waiting for Nanna to go for a colonoscopy to check further into what is causing her stomach pains- she had a scan done on Friday but nothing was picked up - we are hoping to have the procedure booked asap to get Nanna feeling much better again - please pray very hard for great results.
As always, thanks for checking in on us and dont forget to check in on Deqlans friends, links to the right and please continue to pray for our special friends and their families to
WE CAN DO ALL THINGS THROUGH CHRIST WHO STRENGTHENS US
God Bless and all our love
Mark, Samm & Deqlan
Sunday, January 13, 2008
Saturday, January 12, 2008
Have a lovely day with Stephan and Hannah!
God Bless and love
Thursday, January 10, 2008
JUST A QUICK NOTE BEFORE MY LAP TOP BATTERY GOES FLAT THAT WE ARE AT HOME, ALL WENT VERY WELL AND UNITAS PAEDS ONCOLOGY UNIT AND STAFF WERE FANTASTIC.
DEQLAN DID VERY WELL AND DIDNT EVEN MOAN ABOUT NOT BEING ABLE TO EAT OR DRINK SINCE 10 LAST NIGHT
WE MET SOME MORE PATIENTS, A 4 YEAR OLD WITH NEPHROBLASTOMA, HAD KIDNEY TAKEN OUT SO NOW A STAGE 2, SO BETTER PROGNOSIS - A 9 MONTH OLD WITH STAGE 3 NEUROBLASTOMA, PARALISED FROM THE TUMOR WRAPPED AROUND HER SPINE,BUT HOPEFUL TO WALK AGAIN AFTER ITS REMOVED. THEN A 6 YEAR OLD WHO IS AWAITING DIAGNOSIS OF EITHER NEURO OR NEPHRO BLASTOMA. PLEASE PRAY FOR ALL THESE CHILDREN WHO ARE ONLY AT THE START OF THEIR JOURNEYS.
THE WHOLE PROCEDURE TOOK LONGER THEN WE THOUGHT AS THE FANTASTIC ANEATHETIST BATTLED TO GET A VEIN FOR THE DRIP WHICH DIDNT SURPRISE US - BUT ALL WENT WELL AND THE WONDERFUL PATHOLOGIST GOT THE ASPIRATION AND BIOPSY - THE FIRST SET OF RESULTS EXPECTED LATER TODAY , THE MOST IMPORTANT ONE TOMMOROW AND THE REMAINDING ON MONDAY
DEQLAN WOKE UP VERY GROGGY AFTER THE OP AND WAS NOT A HAPPY CAMPER - WE GAVE HIM A BOTTLE TO SEE IF HE WAS HUNGRY - HE DRANK A BIT AND CONTINUED TO CRY ALOT AND THEN THREW IT ALL UP - HE WAS MUCH BETTER AFTER THAT AND CONTINUED ONTO WATER AND JUICE AND WE ARRIVED HOME AFTER LUNCH TIME - HE IS NOW RUNNING AROUND - NO PAIN AT ALL , LAUGHING AND BACK TO HIS NORMAL SELF - THANK YOU LORD
A LOVELY GENTLEEN BY THE NAME OF GRAHAM JUST POPPED IN TO PRAY FOR DEQLAN - I COULD NOT BELIEVE MY EYES WHEN DEQLAN STRECHED OUT HIS ARMS TO GO TO GRAHAM!!!!! THEN I WAS TOTALLY BLOWN AWAY AS GRAHAM STARTED PRAYING USING THE SAME WORDS I USE EVERY TIME I PRAY FOR OUR DEQLAN - I WAS SPEECHLESS AND VERY EMOTIONAL - HE WAS DEFINITELY A MESSENGER FROM THE LORD AND HE TOLD ME TO BELIEVE ALL IS GOING TO BE FINE AND I DO BELIEVE THAT WITH MY ALL AND EVERYTHING- THERE IS NOTHING OUR GOD CAN NOT DO
PROMISE TO POST AS SOON AS I CAN AND AS SOON AS I HAVE MORE INFO
THANK YOU, THANK YOU FROM THE BOTTOM OF OUR HEARTS FOR ALL YOUR MESSAGES AND CALLS FOR TODAY -THEY BRING SO MUCH JOY TO KNOW WE HAVE THE MOST AMAZING ARMY FIGHTING THIS WITH DEQLAN AND ALL STANDING FIRM IN THE FAITH OF THE LORD.
GOD BLESS AND ALL OUR LOVE
MARK, SAMM AND DEQLAN
BY JESUS STRIPES DEQLAN IS HEALED
Wednesday, January 9, 2008
I ENCLOSE THE HISTOLOGY AND YOU WILL NOTE THAT ONLY MATURE GANGLIONEUROMA IS PRESENT!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
This means that every area that they tested from , the cells are completely mature and DEAD!!!!!!!!!!
Thank you Dear Lord, Thank YOU! We rejoice in YOUR name and again i say REJOICE!!!!
I cant even begin to explain how thankful I feel - i am on my knees , Thank You Dear Lord -THROUGH YOU ALL THINGS ARE POSSIBLE TO THOSE WHO BELIEVE!
Just as i was reading the results to Nanna, Grandpa and Meggy , and of course Deqlan himself, Deqlan gave a great big scream and lifted his hands as if to say HOORAY ITS DEAD!
It also stated that the mass was 4 x 3 x 1cm, so much bigger then what they ct scan or ultrasound picked up, but its out - its out-its out!!!!!!!!
The surgeon again metions that the op was quite taxing to remove all the bits off the arteries and that if left he suspected definite problems with high blood pressure and other kidney problems. He confirmed that this started from the left para aortic side partially encasing the aorta and surrounding the origin of the left artery and the course of left renal artery and vein taxing the tenacity of the surgeon for a while. The upper extent of the tumour was at the lower pole of the left adrenal - both adrenals are normal.
Prof Beale ends the letter congratulating Dr De Jager on a highly satisfactory outcome for Deqlan!
What amazing doctors we have been Blessed with - Thank You Lord for working your miracles through Prof Beale and Dr De Jager - two names i shall always remember with such fondness and absolute gratitude and trust and respect.
Thank you to you all for your continued prayers and support - please continue to pray for Deqlans total and permanent healing, permanently
Please continue to pray as we go for the bone marrow biopsy tommorow , that all goes extremely well and that the results for this are just as fantastic and that we can scream NED FOREVER!
We PRAISE AND THANK YOU DEAR LORD , BY JESUS STRIPES DEQLAN CONTINUES TO BE HEALED!
Another special day for Logan as she started her first day of Grade 1! We are so proud of you Logs and cant wait to see you in your school uniform and hear about all the wonderful things you are learning and discovering!
God Bless and all our love on this very special day
Mark, Samm & Deqlan
Tuesday, January 8, 2008
our beautiful little girl has earned her wings about a half hour ago. She went peacefully and in her sleep. I was going to wausaw to pick out a dress for her and the furneal. I wasnt even a block away from the house when jason called and said she wasnt breathing. She waited for me to leave. Please ask the lord the keep her safe and sound
PLEASE PRAY FOR PEACE AND COMFORT FOR JILLIANS FAMILY