well away we go - Thank you Lord the counts where up and we are all systems go - Deqlan has had a good day - had a long sleep this afternoon as was on top form when he woke up!
We made a new friend Reoun - he turned 1 in July so very close to Deqlans age. He has a form of leukimia and comes for chemo every 3 weeks for 1 week at a time! He is gorgeous! He came to say hi to Deqlan through the glass door and they both oooohhhed and aaahhhed at each other and smiled and placed their hands on each others through the glass - was so lovely to see - Deqlan hasnt had 'contact' of any kinds with children since 25 May so we think he really enjoyed it . I took some photos and hope to put up on the blog asap
We are currently on cisplatin till about 1500 tommorow afternoon and then we will get another 24 hours to rehydration to prevent damage to kidneys etc - so far all great !
Deqlan giving us lots of excerise - as you know he loves to be on the floor and pulling on everything but here we are a bit restricted so we have to try very hard to entertain - he was all over the bed tonight keeping even Dada busy - we have to watch every move so as to make sure he doesnt stand or make a movement to pull the porto cath needle out! So lots of Baby Einstein and Baby Genuis videos where watched today and lots of new games created by Nanna out of her Mary Poppins bag
My spirits are a lot higher today and I thank you all so much for your continued love , support , encouragement and so so very grateful for your prayers! You are all in the army fighting this war on neuroblastoma with our gorgeous Deqlan - as always please continue to pray for our friends in South Africa and all around the world
Id also like to thank Mark for the most stunning message left to Deqlan and I - we love you so so so so much and we are so proud of you !
God Bless sleep tight and have a great week
Sacred Heart of Jesus we place our trust in Thee, all for Thee Oh Lord Oh My Jesus All For Theee
All our Love
Mark, Samm & Deqlan